Friday, October 4, 2013

Dr. Swigris' Pulmonary Fibrosis Research Website and Blog

Dr. Jeff Swigris from the Pulmonary Fibrosis Program at National Jewish Health in Denver, Colorado has developed a new "patient-centered" research program for patients with Pulmonary Fibrosis. He is a world leader in the clinical care of patients with Pulmonary Fibrosis and he is also an outstanding clinical researcher studying new ways to improve the everyday life of patients with Pulmonary Fibrosis. He's got some great ideas and I encourage everyone to take a look at his website at http://pulmonaryfibrosisresearch.org. You can join his "P3F Registry" if you are interested in being considered for enrollment into research studies about Pulmonary Fibrosis.

8 comments :

  1. i so needed to see this about using oxygen! i still have challenges accepting the fact that after 4 years, i'm on it 24/7. i WAS looking at it as if i was getting sicker and not looking at it as helping me maintain my quality of life.

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    1. Great to hear that my blog is helping you understand your disease! Keep up the good work!

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  2. I have registered if P3F despite living in Canada. Amanda and I have worked to have my medical records forwarded to them and will see where they can utilize me in their research.

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  3. Is IPF more serious than PF? And if so, im wondering why.

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  4. I would love to see articles on why those with PF have such joint and muscle pain. Also why the weather can contirbute to more diffulty breathing. Thank you.

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  5. My grandmother just passed away from renal failure complications caused by medication that she was taking to treat pulmonary fibribosis. It was a scary time for her. She was diagnosed in February of this year and was told that she only had three months left because of the progression of the disease.

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