Thursday, October 24, 2013

Pulmonary Fibrosis Support Group in New York City

Hi everyone!

I wanted to alert everyone to a new Pulmonary Fibrosis Support Group that we started at Columbia University/New York Presbyterian Hospital in Manhattan. Our next support group will be held on Thursday, November 21 from 3pm to 5pm at 622 W 168th Street in Manhattan. We will be meeting on the 8th floor of the Presbyterian Hospital Building in the Atchley-Loeb Conference Room. I will be there along with the rest of our Pulmonary Fibrosis team at Columbia. We will talk about clinical trials, lung transplantation, and any other topics that people want to talk about.

Please call 212-305-8203 to RSVP.  More information available here.

New post on lung transplantation coming soon!

Thanks
David

2 comments :

  1. Dear doctor my dad has IPF. Recently he has started oxygen concentrator and taking 2 lmp and his oxygen level is 92. But when he goes for toilet or few steps his oxygen level comes down suddenly to 76 even after taking 4 lmp at tht time.he also resort to heavy breathing at tht time. So Wht do u suggest. According to doctor damage of his lung is 85. Plz suggest. Any new drugs for the IPF.

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    Replies
    1. Hi. Thanks for reaching out. I am sorry to here about your father's diagnosis. I cannot give medical advice over the internet. I strongly suggest that you talk to your dad's doctor about this, including asking how much oxygen he should be using with different activities, and whether he should be monitoring his oxygen levels.

      In October 2014, the US FDA approved nintedanib and pirfendone to treat IPF. Both drugs are also available in many other parts of the world. There are a number of ongoing studies of new experimental therapies, but none are yet proven to help treat IPF.

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