Friday, July 4, 2014

Please participate in Dr. Swigris' online oxygen research study at National Jewish

Dr. Jeff Swigris at National Jewish Health in Denver has received funding from the Patient Centered Outcomes Research Institute to run the Participation Program for Pulmonary Fibrosis. study the benefits of using oxygen for people with all kinds of pulmonary fibrosis. This is a free online research study that is easy to participate in from home. He is looking for people with pulmonary fibrosis and their caregivers who meet any of the following criteria:


  1. People with pulmonary fibrosis who are NOT using oxygen during the day
  2. People with pulmonary fibrosis who ARE using oxygen oxygen during the day
  3. Caregivers (usually family members) of people with pulmonary fibrosis

You can learn more here: http://pulmonaryfibrosisresearch.org/current-studies

Email Dr. Swigris' team to let them know you want to participate: support@pfresearch.org

11 comments :

  1. It is unclear to me how there is a choice about whether to use oxygen or not. If you need it, you need it. The benefits seem to be clear, the ability to carry on with one's life. Of course it might be more cost efficient to not provide oxygen for those that need it and simply let them expire, but hopefully we are not quite to that point yet. (I fear we are approaching it, from the attitudes that I see).

    ReplyDelete
  2. Hello Judy, the vast majority of studies concerning supplemental oxygen use involve COPD and other obstructive diseases. There is very little detailed information on how supplemental oxygen use helps the patient with a restrictive disease. We know we need it, the doctors know we need it, everybody knows we need it, but there is not much in the way of "scientific" study on our oxygen use. The more information the better. The better funding from the FDA, the better coverage by Medicare and the insurance industry, and a better knowledge base in the medical community.

    ReplyDelete
  3. If you haven't started oxygen therapy and would like to share your data so that oxygen therapy especially for those with PF can be improved, please contact Jeff's oxygen study group. They are urgently in need of people who HAVEN'T YET STARTED oxygen and there is no time like the present to contact them. To quote Jeff:

    "We'd like patients to contact us if they have PF and are not on oxygen, regardless of how severe it is...we'd rather follow them along and have them never go on oxygen, than miss the opportunity to include them and collect their data..."

    ReplyDelete
    Replies
    1. i have pf but i am not yet on oxygen. elykaren@ymail.com

      Delete
  4. what part does elevation (slc,ut 5000ft elevation) play? should i be thinking of moving?

    ReplyDelete
    Replies
    1. Hi Karen,

      Living at altitude affects different people in different ways. Some folks with PF who live at altitude are sometimes advised by the physician to consider moving to a lower altitude. I suggest that you talk to your pulmonologist your question. It is a good one.

      Delete
  5. Newly diagnosed.12/15
    Waiting to see thoracic surgeon.
    Not on O2.
    Those around are asking why not.
    So far nothing is being done to improve my health.
    Life is changing rapidly. The furstration is beyond belief.
    I work in surgery. My co works are uneasy.
    The questions are mountings. I have no answers

    ReplyDelete
  6. A CT scan in August of 2009 verified that I had Idiopathic Pulmonary Fibrosis. My first symptoms were cough and shortness of breath. I was on prednisone and inhalers. My blood oxygen level was 50 and i was extremely short of breath, i was barely able to breath. I went through cardio pulmonary rehab, It helped but not too long before all the severe symptoms returned. December last year, a family friend told us about Rich Herbs Foundation and their successful lungs disease treatments, we visited their website www.richherbsfoundation.com and ordered their IPF herbal treatment, i am happy to report this treatment effectively reversed my Idiopathic pulmonary fibrosis and symptoms. I am back on my feet, i walk daily now and has made me able to walk my two dogs again without shortness of breath or sudden loss of energy. My activity level is up again.

    ReplyDelete
  7. The initial move towards a less demanding, more advantageous education was home study. World's local classifieds

    ReplyDelete
  8. 6 months ago I was diagnosed with COPD with 55-60% lung capacity. My doctor just said all the crying , stomping your feet will not change it so just accept it and basically patted me on the back and sent me home to die. I was devastated and was afraid to do anything. I stopped riding my bike, I was afraid to do anything that would cause any exertion. It consumed my thoughts with every breath and the fear of what to expect was almost more than I could deal with. So I couldn't get myself all time I decided to find a herbal cure online and I came acrose Doctor Itua on how he cure several people suffering from Hiv, and Herpes I gave him a call on this Number +2348149277967 also chat on whatsapp he gave me all the details about the cure i paid him for the medicine after 5 working days i receieve my herbal medicine ,I use it for two weeks that is how I get Cured and today I'm living healthy and fine I give him thanks also promise him to testify about his work,He Can also cure the following deseases..Copd,Herpes,Hiv,Hepatitis,diabetes,Asthma.
    Contact...drituaherbalcenter@gmail.com

    ReplyDelete
  9. It is very good, but look at the information at this address.
    online classified ads

    ReplyDelete